WHAT WE CAN LEARN FROM
THE DEATH OF
CSAMH (CONNECTICUT SELF ADVOCATES FOR MENTAL HEALTH)
In September 1903, W.E.B. Dubois, a Harvard
educated scholar, published a ground breaking article in which he speculated
that African Americans could only achieve social equality and social justice
through the efforts of a small group of elite intellectuals whom he referred to
as “The Talented Tenth.”
In a recent incident here in Connecticut, a
17 year old inmate identified as having a mental illness imprisoned at the
Manson Youth Institution in Cheshire committed suicide. His incarceration and subsequent death places
a spotlight on the issue of what happens when insufficient community services
for people labeled with mental illness leads to substantially increased numbers
of prison inmates who are considered mentally ill.
In the years since I began to be involved
in advocacy, I continue to see a mental health system plagued with inadequate
resources, hampered by a community – the citizenry of the State of Connecticut—which
still does not seem to understand the ethical and social implications of
refusing to address the needs of some of its most vulnerable—those labeled with
mental illness. After a decade, why is
it that promises state government made to support the recovery of people with
psychiatric labels remains broken?
I do not believe that DMHAS (Department of
Mental Health and Addiction Services) wished for cutbacks in mental health
treatment, but I do believe it is wholly responsible for this outcome. For any oppressed group, be it
African-Americans, homosexuals, or those with other unique abilities, the very
core of social activism which leads to equitable policies and, if necessary,
rehabilitative support, lies in the establishment of powerful and vocal
advocacy groups made up of the members of that group. The NAACP, for example, was the direct
consequence of W.E.B. Dubois’ advocacy, and has been a powerful voice for
change on behalf of people of color in this country.
Where DMHAS is responsible for its own
downfall has been in its systematic elimination of any viable consumer voice
which could speak out on its behalf, while also acting as a loyal opposition in
pointing out its weaknesses and failures in order to correct them for the
better. Personally, I would not say, as
W.E.B. Dubois did, that adequate leadership among people labeled with
psychiatric disabilities must come from the most highly educated among us. In fact, I would put far greater confidence
on the most passionate and the most deeply committed. But what I would say is that in order to
achieve any of our goals in advocating for equality and justice and access to
services, housing, and vocational training, etc. within the community of people
labeled with mental illness, we must be allowed our leaders, and also allowed
the ongoing identification, training, and support of leaders. So far this has not been done.
Years ago, this State had a thriving and
active consumer led organization known as CT Self Advocates For Mental
Health. This was a group that, under the
leadership of Will Brady and Lorraine Stanek and numerous others, among many
other things (I can’t list them all!) conducted conferences, provided
self-help/self-advocacy training, publishing a newsletter called “Emerging Image,”
maintained an information and referral phone line, developed a research
library, participated in DMH and P & A and other top level policy and
strategy meetings, as well as nationwide conferences.
This consumer/survivor led organization
played a central role in developing forward looking and just policies within
the mental health system, as well as educating folks within the community to
promote a stronger base of support and understanding. This is the organization that first
articulated the concept of recovery which DMHAS has currently adopted as its
central philosophy. So what happened to
this organization? In 1992, it was
financially starved out of existence by the then DMH and replaced a year later
by Advocacy Unlimited, an organization which is kept well under the thumb of
DMHAS and does a fraction of the work of CSAMH using substantially more money. But most significantly, Advocacy Unlimited has been used as a means to silence some of the most effective advocates we've had available in the State of Connecticut today.
After the demise of CSAMH, Rowland shut
down Norwich Hospital and Fairfield Hills Hospital while proposing a 41% cut in
the budget for community Mental Health Care.
As a result of the closing and the cuts in the state budget, a
substantial number of people who might otherwise be receiving mental health
treatment are ending up in jail. As a
result, The Hartford Courant reported that “prison expenditures tripled
in Connecticut since 1991 to more than a half-billion dollars a year.” (7/31/05) I can’t help wondering if this all could have
been avoided if DMHAS had preserved the voices of the very people—maverick consumers
and survivors—who could most powerfully have spoken out against such foolish
and misguided policies.
So this is the lesson. If DMHAS cannot tolerate a free, independent
and proud consumer/survivor organization based upon the principles of
empowerment, self-determination and justice, one which takes as its central role
the task of challenging DMHAS and other state agencies, as well as the citizens
and legislators in the State of CT, to maintain the highest standards of
service to the community of those labeled with psychiatric disabilities, then
they will continue to face the imprisonment, death, and ongoing deterioration
of members of that community, and they remain solely responsible for that
outcome.
Similar situation occurred in NYC in the late 70's. On the verge of bankruptcy, they just opened the door to their psychiatric facilities. Most became homeless. To make matters worse, there were cities who would put their released patients on a one way bus trip to NYC Port Authority Bus Terminal. Sadly as with everything else, if there isn't a strong advocacy group, it will get neglected by politicians.
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